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- Missy
- I'm a Special Education teacher and Reading Specialist. My husband and I have been married for 8 years and we have 4 boys, ages 14, 7 year old twins and a 5 year old. Our 14 year old is gifted. One of our twins has PDD_NOS, Apraxia, and Learning Disabilities, his brother has Aspergers, Learning Disabilities, and Anxiety. Our 5 year old has a 16p11.2 duplication, apraxia, dysarthria, and PDD_NOS.
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Listen to MUSNT's childListen to the DONT'SListen to the SHOULDNT'SThe IMPOSSIBLES the WONT'SListen to the NEVER HAVESThan Listen close to me ANYTHING can happen childANYTHING can be. -Shel Silverstein
I don't think the worst thing that could happen to me is having a child with special needs. I think the worst thing would be to raise a child who is cruel to people with special needs." ~ Matthew Mickelson Butman
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The Autism Pizza
It's a good explanation of how things line up on the spectrum.
1. The Crust: Lack of Social Interaction (poor eye contact, not sharing interests with you, no pointing/gesturing)
2. The Sauce: Impaired Communication (possibly no speech, poor conversation skills, repetitive language, echolalia, no make-believe play)
3. The Cheese: Stereotypical Activities & Interests (extreme routine, strong interest in certain things, stimming [flapping, atypical play, etc.] -- like spinning wheels, lining toys up, stacking, etc.)
If you have all of those things: crust, sauce, cheese, you made an Autism pizza. It might have different toppings, but you can look at it and know it's still a pizza. If your pizza doesn't have sauce, that's Aspergers's. If your pizza is missing more than that but still kind of looks like a pizza, that's PDD-NOS (Pervasive Developmental Disorder, Not Otherwise Specified)
It's a good explanation of how things line up on the spectrum.
1. The Crust: Lack of Social Interaction (poor eye contact, not sharing interests with you, no pointing/gesturing)
2. The Sauce: Impaired Communication (possibly no speech, poor conversation skills, repetitive language, echolalia, no make-believe play)
3. The Cheese: Stereotypical Activities & Interests (extreme routine, strong interest in certain things, stimming [flapping, atypical play, etc.] -- like spinning wheels, lining toys up, stacking, etc.)
If you have all of those things: crust, sauce, cheese, you made an Autism pizza. It might have different toppings, but you can look at it and know it's still a pizza. If your pizza doesn't have sauce, that's Aspergers's. If your pizza is missing more than that but still kind of looks like a pizza, that's PDD-NOS (Pervasive Developmental Disorder, Not Otherwise Specified)
2 comments:
I managed to find quite a bit of information on chromosome disorders on a site called UNIQUE, which is based out of the UK. I registered there as a member (even though I am from Canada!) and they can even try to match you with families that have the same disorder. Unfortunately for us they don't have a match, but they have lots of information on 16p. They even have PDF files that you can print off for school/medical/family uses:)
Jenn, the SimonsVIPconnect website has more information on the 16p syndrome and will match people up in their area. We used Unique right after we were diagnosed and still do to print off handouts for others.
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