I felt like I was jumping through hoops!
We had an appointment in June where we didn’t qualify because we had too much money in hidden assets; we fixed it by cashing out all of George’s bonds and using them to pay for bills and groceries. Now we have no backup if we can’t pay a bill. Thank you Uncle Sam for making us financially unstable so we can’t pay bills.
The person wanted to know multiple times why we were applying for Welfare. We aren’t applying for Welfare; we are applying for financial assistance for our disabled child. There is a difference!
Then, we had to prove that he wasn’t going to improve drastically. I can’t remove the extra 3 pieces of his 16th chromosome. I can’t! I can’t make him NOT be autistic. She kept asking over and over if he would have a chance of NOT being disabled.
Seriously, life with a child who has a disability isn’t hard enough? Between the SSDI thing, trying to get OT STILL for my child. Aetna, I’m talking to you and your claim department!, I’m going to need my two buddies tonight Ben and Jerry and maybe my boyfriend Eric. Pam, you aren’t going to barge in this time with the vampire emergency, right?





2 comments:
I have had this feeling before. Does your state have a supplimental medicare for children with disabilities? In Indiana it is called Children's Special Healthcare. And covers higher incomes than Medicaid does. Catch me at Bloggy Moms
MusingMom
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In NJ we have to qualify for the SSDI before we can recieve the medicare. It stinks! I wish there was one standard across all 50 states.
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