Developmental Pediatrician

He thinks we need to up speech therapy from once a week to twice a week going from one hour to two. He wants us to up developmental therapy from once a week for an hour to three times a week for an hour each time and keep physical therapy at once a week for an hour. We are to have blood work done for a complete DNA analysis to rule out chromosomal disorders. He kept mentioning fragile X syndrome but said he didn't think he had it. He said he wants to do a PKU tests as well. We are to have the MRI redone in June to compare the results from the first one. He said that if that shows something else then we will go from there.

He said he's curious to see if his "delayed mylenation" is that, just delayed or if it will show points in his brain where growth has stopped. He said the difference is that with delayed mylenation there is growth slow but steady. He said he is somewhat growing with motor skills but fits the slow but steady mold there but with speech and language there really has been no growth at all. He is below the 6th month level.

As far as sleeping, we are to do melatonin which is what we wanted to try to begin with. He said that the sleep study that the Pedi and neurologist wanted to do was not needed since he had previous EEG's which showed nothing. We are to start at 1 ml of melatonin and go up by .5 if needed until we hit 3 ml with him and if he still doesn't sleep at the dosage of 3ml then we are to try Nyquil since he said it is straight up bennydryl. IF that doesn't work he will call in a script for a sleep aid. Hopefully we won't have to go that route considering last night giving him the 1 ml of melatonin he slept from 7:45 pm to around 7 am!

As far as his sensory difficulties, he said to avoid things that he doesn't like instead of trying to get him to de-sensitize himself to them. He said to provide a teething ring or the suggestion for the chewy toy that someone gave me for sensory input and he also said that the toothbrush that we use for him is also a good idea. I am going to order a few things from this website http://www.chewytubes.com/chewytubes/ps_and_qs.htm

Oh, and, the tubes put in less than a month ago, one is out already. It was there and in place last week and now is out of place already. ARGH!

Now, we will have a meeting hopefully on May 4th with our Early Intervention team and discuss the results. His recommendations in regards to Early Intervention are just that, recommendations. The ball is in their court now to follow through with the therapy suggestions. I just pray that they do.

On a lighter note, last weekend when it was so nice out we took the boys out to play and I let them have tons of fruit outside as they played. The local farmers market had pineapple for 79 cents and strawberries for 1.49 a pint. These kiddies went through two pineapples and a pint of strawberrries! We also took Matty to see Aliens vs. Monsters and he loved it. It really was a cute movie but I am really looking forward to one of the previews http://www.sonypictures.net/movies/cloudywithachanceofmeatballs/

I also have to go out shopping this week for Matthew. He hit some growth spurt! Shirts that I got him about a month ago were getting short! I had to get him size 5 little boy shirts and shorts! The poor kid needed new underwear too since he was outrowing them as well. The problem with underwear is that they go size 4 to size 6. The 6's are too big but the 4's are too tight around his legs. I hope they will be grown into soon.

I couldn't resist showing off this face that was all strawberried and pineapple juiced up :)
Jon posed for pictures for me.

Matthew was trying to show me his muscles!